Thursday, December 20, 2007
One of many flaws
I've had Christmas cards, HANDMADE no less, done since November. They are all put together, and as of Tuesday are now all signed. I've got my list of who they go to. I know where/how to find the addresses I am missing. I've got stamps. And yet, there they sit. Still at home. Unmailed. I do this all the time!! What is wrong with me!?!?!?!
Tuesday, December 11, 2007
Nice afternoon with a friend
Yesterday, after I picked the kids up from school, we headed over to see some friends about 15 minutes from us. We do this often, about every 2-3 weeks, which never seems often enough.
Each time, we arrive around 3:30 and stay until about 5:00. And each time, I am struck at how quickly our time goes by. An hour and a half feels like a brief 10 minutes. Our children play beautifully together, giving us time to actually interact and be adults, rather than brief, unfinished snippets interrupted by the need to intervene before first blood. It really is amazing to have a friend dear to me, who has a child that is a dear friend to my son, and another child who is a dear friend to my daughter, but that they all get along as a unit as well. I always look forward to our visits, and its so nice to know that the kids do, too; that they enjoy seeing their friends as much as I enjoy seeing mine, and that they are all under the same roof!
And each time, I am struck by what a wonderful, beautiful person my friend truly is. She has a huge heart, is a wonderful mother, compassionate friend, intelligent conversationalist, realistic optimist...I could go on and on. I love that we are able to share the triumphs and struggles of being a parent, but I also love that she is the one friend that realizes that there is more to talk about than just being a mother, that the kids are not the only possible topic of conversation. I love that we are able to share our sincere thoughts and opinions with one another about any topic without risk of feeling judged or insulted. I love that we can share a laugh and a tear within moments of each other. Its been a long time since I've had a friend who just calls to say hello and check in, who makes time in a busy world for friendship, who understands that the world is a busy place, who embraces the idea of unconditional love, who is overwhelmingly positive, and who makes me truly want to do all those the same in return.
I feel insanely blessed to have a friend so dear, who seemingly feel in to our lives by complete chance...but nothing is ever just by chance, is it?
Each time, we arrive around 3:30 and stay until about 5:00. And each time, I am struck at how quickly our time goes by. An hour and a half feels like a brief 10 minutes. Our children play beautifully together, giving us time to actually interact and be adults, rather than brief, unfinished snippets interrupted by the need to intervene before first blood. It really is amazing to have a friend dear to me, who has a child that is a dear friend to my son, and another child who is a dear friend to my daughter, but that they all get along as a unit as well. I always look forward to our visits, and its so nice to know that the kids do, too; that they enjoy seeing their friends as much as I enjoy seeing mine, and that they are all under the same roof!
And each time, I am struck by what a wonderful, beautiful person my friend truly is. She has a huge heart, is a wonderful mother, compassionate friend, intelligent conversationalist, realistic optimist...I could go on and on. I love that we are able to share the triumphs and struggles of being a parent, but I also love that she is the one friend that realizes that there is more to talk about than just being a mother, that the kids are not the only possible topic of conversation. I love that we are able to share our sincere thoughts and opinions with one another about any topic without risk of feeling judged or insulted. I love that we can share a laugh and a tear within moments of each other. Its been a long time since I've had a friend who just calls to say hello and check in, who makes time in a busy world for friendship, who understands that the world is a busy place, who embraces the idea of unconditional love, who is overwhelmingly positive, and who makes me truly want to do all those the same in return.
I feel insanely blessed to have a friend so dear, who seemingly feel in to our lives by complete chance...but nothing is ever just by chance, is it?
Friday, November 16, 2007
It warms my heart...
William's teacher and I have a paper that we communicate with on a daily basis. It basically lets us each know what kind of day/evening he had so we can anticipate how he will be. It allows us to be proactive with his interventions rather than reactive, thus keeping him on a more even keel throughout the entire day/week.
Yesterday, I sent a note saying that at dinner the previous evening, William told us that Mrs. "T" is his best friend, because "the red table gets to her," just as it got to William so he asked to be moved. I thought it was a cute, sweet thing to say and wanted her to know that he thought of her so highly because of their shared sentiments over the students at the red table.
After school yesterday, I noticed that he didn't have a daily note in his backpack. No biggie. We've both forgotten before when things get a little harried. Imagine my surprise when I checked my email later and found this from his teacher...
"We worked a little too close to the end of the day and I didn't get to William's note. I loved his comment about the red table-- I think William is good therapy for me!
He had a good day-- even with a fire drill and a lockdown in the dark. He had no trouble with "making connections." I'm starting to think he thrives with chaos :-)"
Thriving in chaos is a necessity in our family :) And I think William is good therapy for everyone. I don't think they make them any better or sweeter than him.
Yesterday, I sent a note saying that at dinner the previous evening, William told us that Mrs. "T" is his best friend, because "the red table gets to her," just as it got to William so he asked to be moved. I thought it was a cute, sweet thing to say and wanted her to know that he thought of her so highly because of their shared sentiments over the students at the red table.
After school yesterday, I noticed that he didn't have a daily note in his backpack. No biggie. We've both forgotten before when things get a little harried. Imagine my surprise when I checked my email later and found this from his teacher...
"We worked a little too close to the end of the day and I didn't get to William's note. I loved his comment about the red table-- I think William is good therapy for me!
He had a good day-- even with a fire drill and a lockdown in the dark. He had no trouble with "making connections." I'm starting to think he thrives with chaos :-)"
Thriving in chaos is a necessity in our family :) And I think William is good therapy for everyone. I don't think they make them any better or sweeter than him.
Monday, October 29, 2007
From Yahoo News this morning...
Even reading this, if we had been sent for an "early screening," I don't think William's diagnosis would have come until after the age of 3, but I could be wrong. This is a step in the right direction, if pediatricians heed this advice.
Pediatricians urge autism screening
By LINDSEY TANNER, AP Medical Writer 21 minutes ago
CHICAGO - The country's leading pediatricians group is making its strongest push yet to have all children screened for autism twice by age 2, warning of symptoms such as babies who don't babble at 9 months and 1-year-olds who don't point to toys.
The advice is meant to help both parents and doctors spot autism sooner. There is no cure for the disorder, but experts say that early therapy can lessen its severity.
Symptoms to watch for and the call for early screening come in two new reports. They are being released by the American Academy of Pediatrics on Monday at its annual meeting in San Francisco and will appear in the November issue of the journal Pediatrics and on the group's Web site — http://www.aap.org/.
The reports list numerous warning signs, such as a 4-month-old not smiling at the sound of Mom or Dad's voice, or the loss of language or social skills at any age.
Experts say one in 150 U.S. children have the troubling developmental disorder.
"Parents come into your office now saying 'I'm worried about autism.' Ten years ago, they didn't know what it was," said Dr. Chris Johnson of the University of Texas Health Science Center in San Antonio. She co-authored the reports.
The academy's renewed effort reflects growing awareness since its first autism guidelines in 2001. A 2006 policy statement urged autism screening for all children at their regular doctor visits at age 18 months and 24 months.
The authors caution that not all children who display a few of these symptoms are autistic and they said parents shouldn't overreact to quirky behavior.
Just because a child likes to line up toy cars or has temper tantrums "doesn't mean you need to have concern, if they're also interacting socially and also pretending with toys and communicating well," said co-author Dr. Scott Myers, a neurodevelopmental pediatrician in Danville, Pa.
"With awareness comes concern when there doesn't always need to be," he said. "These resources will help educate the reader as to which things you really need to be concerned about."
Another educational tool, a Web site that debuted in mid-October, offers dozens of video clips of autistic kids contrasted with unaffected children's behavior. That Web site — http://www.autismspeaks.org/ — is sponsored by two nonprofit advocacy groups: Autism Speaks and First Signs. They hope the site will promote early diagnosis and treatment to help children with autism lead more normal lives.
The two new reports say children with suspected autism should start treatment even before a formal diagnosis. They also warn parents about the special diets and alternative treatments endorsed by celebrities, saying there's no proof those work.
Recommended treatment should include at least 25 hours a week of intensive behavior-based therapy, including educational activities and speech therapy, according to the reports. They list several specific approaches that have been shown to help.
For very young children, therapy typically involves fun activities, such as bouncing balls back and forth or sharing toys to develop social skills; there is repeated praise for eye contact and other behavior autistic children often avoid.
Mary Grace Mauney, an 18-year-old high school senior from Lilburn, Ga., has a mild form of autism that wasn't diagnosed until she was 9.
As a young girl, she didn't smile, spoke in a very formal manner and began to repeat the last word or syllable of her sentences. She was prone to intense tantrums, but only outside school. There, she excelled and was in gifted classes.
"I took her to a therapist and they said she was just very sensitive and very intense and very creative," said her mother, Maureen, 54.
Pediatricians should send such children for "early intervention as soon as you even think there's a problem," Johnson said.
Dr. Ruby Roy, a pediatrician with Loyola University Medical Center, who treats at least 20 autistic children, applauded the reports.
"This is a disorder that is often missed, especially when it's mild, and the mild kids are the ones ... who can be helped the most," Roy said.
Dr. Dirk Steinert, who treats children and adults at Columbia St. Mary's clinic in suburban Milwaukee, said the push for early autism screening is important — but that it's tough to squeeze it into a child's regular wellness checkup.
Some pediatricians have tried scheduling a visit just to check for developmental problems, when children are 2 1/2. The problem is that insurance doesn't always cover these extra visits, Steinert said.
Pediatricians urge autism screening
By LINDSEY TANNER, AP Medical Writer 21 minutes ago
CHICAGO - The country's leading pediatricians group is making its strongest push yet to have all children screened for autism twice by age 2, warning of symptoms such as babies who don't babble at 9 months and 1-year-olds who don't point to toys.
The advice is meant to help both parents and doctors spot autism sooner. There is no cure for the disorder, but experts say that early therapy can lessen its severity.
Symptoms to watch for and the call for early screening come in two new reports. They are being released by the American Academy of Pediatrics on Monday at its annual meeting in San Francisco and will appear in the November issue of the journal Pediatrics and on the group's Web site — http://www.aap.org/.
The reports list numerous warning signs, such as a 4-month-old not smiling at the sound of Mom or Dad's voice, or the loss of language or social skills at any age.
Experts say one in 150 U.S. children have the troubling developmental disorder.
"Parents come into your office now saying 'I'm worried about autism.' Ten years ago, they didn't know what it was," said Dr. Chris Johnson of the University of Texas Health Science Center in San Antonio. She co-authored the reports.
The academy's renewed effort reflects growing awareness since its first autism guidelines in 2001. A 2006 policy statement urged autism screening for all children at their regular doctor visits at age 18 months and 24 months.
The authors caution that not all children who display a few of these symptoms are autistic and they said parents shouldn't overreact to quirky behavior.
Just because a child likes to line up toy cars or has temper tantrums "doesn't mean you need to have concern, if they're also interacting socially and also pretending with toys and communicating well," said co-author Dr. Scott Myers, a neurodevelopmental pediatrician in Danville, Pa.
"With awareness comes concern when there doesn't always need to be," he said. "These resources will help educate the reader as to which things you really need to be concerned about."
Another educational tool, a Web site that debuted in mid-October, offers dozens of video clips of autistic kids contrasted with unaffected children's behavior. That Web site — http://www.autismspeaks.org/ — is sponsored by two nonprofit advocacy groups: Autism Speaks and First Signs. They hope the site will promote early diagnosis and treatment to help children with autism lead more normal lives.
The two new reports say children with suspected autism should start treatment even before a formal diagnosis. They also warn parents about the special diets and alternative treatments endorsed by celebrities, saying there's no proof those work.
Recommended treatment should include at least 25 hours a week of intensive behavior-based therapy, including educational activities and speech therapy, according to the reports. They list several specific approaches that have been shown to help.
For very young children, therapy typically involves fun activities, such as bouncing balls back and forth or sharing toys to develop social skills; there is repeated praise for eye contact and other behavior autistic children often avoid.
Mary Grace Mauney, an 18-year-old high school senior from Lilburn, Ga., has a mild form of autism that wasn't diagnosed until she was 9.
As a young girl, she didn't smile, spoke in a very formal manner and began to repeat the last word or syllable of her sentences. She was prone to intense tantrums, but only outside school. There, she excelled and was in gifted classes.
"I took her to a therapist and they said she was just very sensitive and very intense and very creative," said her mother, Maureen, 54.
Pediatricians should send such children for "early intervention as soon as you even think there's a problem," Johnson said.
Dr. Ruby Roy, a pediatrician with Loyola University Medical Center, who treats at least 20 autistic children, applauded the reports.
"This is a disorder that is often missed, especially when it's mild, and the mild kids are the ones ... who can be helped the most," Roy said.
Dr. Dirk Steinert, who treats children and adults at Columbia St. Mary's clinic in suburban Milwaukee, said the push for early autism screening is important — but that it's tough to squeeze it into a child's regular wellness checkup.
Some pediatricians have tried scheduling a visit just to check for developmental problems, when children are 2 1/2. The problem is that insurance doesn't always cover these extra visits, Steinert said.
Friday, October 26, 2007
Grant me strength
Last night I had the opportunity to catch the premiere of "Dan in Real Life" starring Steve Carrell. Good movie! But here's the thing, in it, I saw a very real glimpse into my future, and it frightened me-immensely! If you see it, and you know anything about my daughter, I dare you to tell me there isn't a striking attitude resemblence between the her and the middle daughter in the movie. You know you're gut instinct about such things is right when the movie character turns to her father and screams, "YOU ARE A MURDERER OF LOVE!" and both of your sisters turn to you and say, "Oh, that's Evie right there!"
Heaven help me. I'm gonna need it.
Heaven help me. I'm gonna need it.
Monday, October 08, 2007
My special gifts
I've come to realize over the years that no one in this world can make me laugh harder than my own children can. On an almost daily basis, they do or say something that either makes me laugh out loud, or forces me to subdue a giggle because to do so might condone, or even encourage, less-than-desirable behavior.
Take this conversation, for instance, as an example for both:
Evie, having just watch a commercial about a fitness club or Nutri-system or something similar, says, "If you exercise, then you get skinny, right?"
I said, "Well, yes, kind of...not right away...you have to keep doing it."
She whips her head my direction, "YOU need to exercise then."
(Stiffled laughter because, while funny AND true, she needs to be taught that such statements are rude.)
William chimes in, as matter-of-fact as you can get, "But if you exercise and you don't get skinny, that means you're about to have a baby."
LAUGHED OUT LOUD.
Take this conversation, for instance, as an example for both:
Evie, having just watch a commercial about a fitness club or Nutri-system or something similar, says, "If you exercise, then you get skinny, right?"
I said, "Well, yes, kind of...not right away...you have to keep doing it."
She whips her head my direction, "YOU need to exercise then."
(Stiffled laughter because, while funny AND true, she needs to be taught that such statements are rude.)
William chimes in, as matter-of-fact as you can get, "But if you exercise and you don't get skinny, that means you're about to have a baby."
LAUGHED OUT LOUD.
Tuesday, October 02, 2007
What's your name?
I saw this on another blog and decided to play along :)
1. YOUR ROCK STAR NAME: (first pet, current car) Snuggles Windstar
2. YOUR GANGSTA NAME: (favorite ice cream, favorite cookie) Mint Chocolate Chip Chocolate Chip
3. YOUR FLY “GUY/GIRL” NAME: (first initial first name, first 3 letters last name) C-WHI
4. YOUR DETECTIVE NAME: (favorite color, favorite animal) Red Cat
5. YOUR SOAP OPERA NAME: (middle name, city where you were born) Anne Columbus
6. YOUR STAR WARS NAME: (first 3 letters last name, first 2 letters first name) WHICY
7. SUPERHERO NAME: (2nd favorite color, favorite drink and add” the”) The Orange Iced Tea
8. NASCAR NAME: (first names of your grandfathers) Charles Marion
9. STRIPPER NAME: (favorite perfume, favorite candy) Happy Snickers
10. WITNESS PROTECTION NAME: (mother’s and father’s middle names) Jo Anthony
1. YOUR ROCK STAR NAME: (first pet, current car) Snuggles Windstar
2. YOUR GANGSTA NAME: (favorite ice cream, favorite cookie) Mint Chocolate Chip Chocolate Chip
3. YOUR FLY “GUY/GIRL” NAME: (first initial first name, first 3 letters last name) C-WHI
4. YOUR DETECTIVE NAME: (favorite color, favorite animal) Red Cat
5. YOUR SOAP OPERA NAME: (middle name, city where you were born) Anne Columbus
6. YOUR STAR WARS NAME: (first 3 letters last name, first 2 letters first name) WHICY
7. SUPERHERO NAME: (2nd favorite color, favorite drink and add” the”) The Orange Iced Tea
8. NASCAR NAME: (first names of your grandfathers) Charles Marion
9. STRIPPER NAME: (favorite perfume, favorite candy) Happy Snickers
10. WITNESS PROTECTION NAME: (mother’s and father’s middle names) Jo Anthony
Monday, October 01, 2007
Testing her boundaries...
When I signed on for this whole parenting thing, I *KNEW* there would be dumb arguments and irrational temper tantrums. What I didn't anticipate was over 2 hours of being screamed at and being called a BIG! FAT! MEANIE!! What, you wonder, could cause such a reaction? Surely something heinous and completely without justification, right? Well, brace yourself 'cause here it comes...I suggested she eat an apple instead of pudding for her snack. AHHH! Such a demon I am, so horrible a parent, I should never be allowed to be in the presence of children again!!
Though the majority of the ordeal took place within the confines of her room, she did manage to sneak in the following here and there while in my vacinity: She slapped me, and bit me. She mooned me (that was one of those moments where you try VERY hard not to laugh). She threatened to scribble all over my "papers" with red marker (I was making a card). She walked on the back of the couch while mocking, "look at me, I'm on climbing on the furniture!" She exclaimed repeatedly that I was going to give her what she wants, or she was just going to go take it.
Who knew that pudding was so powerful? I'll have to check the box next time and see just what Jell-O is putting into their packages.
Though the majority of the ordeal took place within the confines of her room, she did manage to sneak in the following here and there while in my vacinity: She slapped me, and bit me. She mooned me (that was one of those moments where you try VERY hard not to laugh). She threatened to scribble all over my "papers" with red marker (I was making a card). She walked on the back of the couch while mocking, "look at me, I'm on climbing on the furniture!" She exclaimed repeatedly that I was going to give her what she wants, or she was just going to go take it.
Who knew that pudding was so powerful? I'll have to check the box next time and see just what Jell-O is putting into their packages.
Tuesday, September 18, 2007
A letter to my kids
Dear William and Evie,
There you are. You are off again for another day of school. You are starting to really get settled into this routine of craziness that has become our lives. You are taking responsibility for the tasks that must get done, complying with endless requests for your time and attention as you grow into this pulled-in-every-direction lifestyle that has become the American way.
Here I am. Worrying about you as usual. There are times I wish we could go back to when you were very small and I could control everything in the world around you. I could shelter you from unkind words, protect you from people with unkind hearts, and shield you from the slings and arrows of an all-too-often unkind world.
But you are handling it like pros. You are learning so quickly that life is a road of give-and-take. That there are difficulties to be negotiated and rewards to be discovered, both often in the most unlikely of places. While I miss that you no longer fit so snuggly on my lap or shoulder, I am overwhelmed that your little arms still secure around my neck. And I can't help but smile through bittersweet tears when I am the audience for your efforts to earn just a little more independence from your childhood...a small whisper in my ear, "can I stay up a little bit later now because I am second-grader?" 15 minutes, we agree; a hands-on-hips declaration, "I'm big enough to do it myselth (so cute that you don't say it 'myselF')." So you are, I concede.
I'm learning quickly to choose my battles wisely with you. In the end, you will only be this young and this small for today. So go out into the world in your mismatched outfit because it has both of the colors of the day, eat nothing but bread for snack, and remember that at the end of the day it doesn't matter what you wore or what you ate, but rather who you were that day that matters. And you, my children, are wonderful.
Love,
Mom
There you are. You are off again for another day of school. You are starting to really get settled into this routine of craziness that has become our lives. You are taking responsibility for the tasks that must get done, complying with endless requests for your time and attention as you grow into this pulled-in-every-direction lifestyle that has become the American way.
Here I am. Worrying about you as usual. There are times I wish we could go back to when you were very small and I could control everything in the world around you. I could shelter you from unkind words, protect you from people with unkind hearts, and shield you from the slings and arrows of an all-too-often unkind world.
But you are handling it like pros. You are learning so quickly that life is a road of give-and-take. That there are difficulties to be negotiated and rewards to be discovered, both often in the most unlikely of places. While I miss that you no longer fit so snuggly on my lap or shoulder, I am overwhelmed that your little arms still secure around my neck. And I can't help but smile through bittersweet tears when I am the audience for your efforts to earn just a little more independence from your childhood...a small whisper in my ear, "can I stay up a little bit later now because I am second-grader?" 15 minutes, we agree; a hands-on-hips declaration, "I'm big enough to do it myselth (so cute that you don't say it 'myselF')." So you are, I concede.
I'm learning quickly to choose my battles wisely with you. In the end, you will only be this young and this small for today. So go out into the world in your mismatched outfit because it has both of the colors of the day, eat nothing but bread for snack, and remember that at the end of the day it doesn't matter what you wore or what you ate, but rather who you were that day that matters. And you, my children, are wonderful.
Love,
Mom
Monday, September 17, 2007
Which way is up?
When school ended in the spring, I was convinced that we would all have a nice, relaxing summer, that everything would slow down, we could catch up on all those things we hadn't gotten to yet, we would enjoy the warm weather, and be a little more carefree. What followed seemed the CRAZIEST summer we've ever had. I remember thinking halfway through it all that rather than things slowing down, it was busier than the school year ever was.
So when this new school year was on the horizon, I thought "GREAT!" Things will finally slow down, get back into a routine, and we can sit back and enjoy our quiet evenings together, and catch up on all those things we hadn't gotten to yet (sensing a theme?). Wrong again. We are never home. Most nights, I find myself trying to be in at least 2 places at once. Activities are prioritized so we are constantly having to skip something, leave early from something, or arrive late to something. I feel like this craziness is never going to end. But I also think I might thrive on it. I think Evie does to. She thoroughly enjoys being constantly on the go and stays right on top of everything that needs to be done. It's like a test...can we remember it all AND get it all done in the allotted time? It's like being on a game show--Amazing Race, Home Edition.
I feel sorry for William though. He would so much rather be at home or playing outside. He's probably beginning to think that the only thing we need a home for is homework, bathing, and sleeping. But he handles it like a trooper. Just grabs his new GameBoy and is ready to go.
So yesterday, our only day "off" for basically the entire month of September, we took a day and did...NOTHING! I did a little cleaning (not as much as I should have, but remember, it was our day off :) and got some Stampin' Up stuff taken care of; William played games and watched movies and pretended to be a super hero; Evie did crafty stuff and tormented the cats. It was nice, but now...I regret it. I regret that I didn't get more done while we were at home, I regret that we didn't run some errands that could have gotten out of the way, I regret that we didn't call up family or friends to see if they wanted to visit with us since we never see anyone any more. But the kids don't regret it, so we all must have needed it. It was our night of rest before heading off on our next leg of the Amazing Race. On your marks, get set, go...
So when this new school year was on the horizon, I thought "GREAT!" Things will finally slow down, get back into a routine, and we can sit back and enjoy our quiet evenings together, and catch up on all those things we hadn't gotten to yet (sensing a theme?). Wrong again. We are never home. Most nights, I find myself trying to be in at least 2 places at once. Activities are prioritized so we are constantly having to skip something, leave early from something, or arrive late to something. I feel like this craziness is never going to end. But I also think I might thrive on it. I think Evie does to. She thoroughly enjoys being constantly on the go and stays right on top of everything that needs to be done. It's like a test...can we remember it all AND get it all done in the allotted time? It's like being on a game show--Amazing Race, Home Edition.
I feel sorry for William though. He would so much rather be at home or playing outside. He's probably beginning to think that the only thing we need a home for is homework, bathing, and sleeping. But he handles it like a trooper. Just grabs his new GameBoy and is ready to go.
So yesterday, our only day "off" for basically the entire month of September, we took a day and did...NOTHING! I did a little cleaning (not as much as I should have, but remember, it was our day off :) and got some Stampin' Up stuff taken care of; William played games and watched movies and pretended to be a super hero; Evie did crafty stuff and tormented the cats. It was nice, but now...I regret it. I regret that I didn't get more done while we were at home, I regret that we didn't run some errands that could have gotten out of the way, I regret that we didn't call up family or friends to see if they wanted to visit with us since we never see anyone any more. But the kids don't regret it, so we all must have needed it. It was our night of rest before heading off on our next leg of the Amazing Race. On your marks, get set, go...
Monday, August 27, 2007
Tuesday, August 21, 2007
Defending the world while he sleeps
Oh, how I wish I had a picture of this to share. William has a superhero costume that came with a black face mask. Last night, he fell asleep in the mask. Too cute.
Friday, August 17, 2007
Feeling Blessed
Last night William had his first outpatient occupational therapy session at the Childrens Hospital main campus. Though the hospital treats some very ill kids, I went expecting that in the occupational and physical therapy waiting area we would really only run into kids who were recovering from everyday accidents, perhaps a few with broken bones, a few with birth defects that require these services, and of course, other kids on the autism spectrum. How very wrong I was...and how very lucky I am.
When we arrived at the hospital, I of course parked in the visitor parking area that was as far away as possible from where we actually needed to be which caused us to take a lengthy jaunt through the hospital halls. This brought one of the first moments that made me stop and catch my breath. There it was, in a hospital just for children, a huge sign that said "Hospice." I said a silent prayer for all the families there, all the while my sweet son chattered away about his latest video game obsession as we continued quickly through the hallways. As we passed the Radiology department I wondered whether my friend's sister was working but decided that since I wasn't 100% sure where I was going that we should just keep moving.
Upon (finally) arriving at our destination of a tiny little waiting area just outside a set of elevators, we were kindly greeted by a gentleman and his father. The man immediately asked William if he would like to play a game of tic, tac, toe. In true style, William ignored him and played on the wooden tic, tac, toe board alone. Still under my above mentioned assumptions, I figured this man was waiting for a child that was with an occupational or physical therapist, and made mental note of how kind the man seemed. We all went about our business; reading, chit-chatting, playing a game of solitaire tic, tac, toe.
Down the hall from the OT/PT gym, I watched as a nurse, a mother, and a small boy began walking toward the elevators in front of us. Enter moment #2. This small boy (probably 2-3 yrs old) had patchy hair undoubtedly from chemo treatment and a tiny face covered in a mask. His mother and the nurse had taken him on a walk and to see if he had the energy to play on the hospital's playground. More silent prayers as I watched him reach up his tiny fingers to push the elevator buttons.
Early for our appointment as usual, we still had time to kill. William continued his game of tic, tac, toe and I watched as the nice man from before reached out and turned one of the pieces and said "I'm O's," trying to engage him in a competition. Without looking up, William turned the block back around, uttered a polite but stern, "no," and continued on his own. The man then turns to me and asks if I have a child staying on this floor. What? I thought all of the kids in this area were outpatient. I explain why we are there and then return the question. Moment #3.
His 17 year old son left for football practice one morning. At 8AM he started working out with the team. By 8:10, he had passed out. 10 minutes. His life, his families lives, completely changed in those 10 minutes. Taken from his local hospital to Childrens for days of CAT scans and surgery. The result...a Stage 4 brain tumor. His family's address is now the Ronald McDonald house. They were in the waiting area when we got there because his son was having an MRI. They are currently awaiting the results of the MRI to tell them whether or not the cancer has spread through the spinal fluid into his central nervous system. As this sweet, strong man told me his story, I watched my son play alone and was ever more thankful for him. I didn't think that was possible. I was thankful for his health, his smile, his unwillingness to allow a strange man to play games with him, his incessant chatter about that stupid video game.
I left content that this soon to be "routine" trip to OT at Childrens' Hospital had made a profound impact on me, but sorrowful for the reasons why, touched by the families inside who share their stories in tiny waiting rooms outside of elevators and who tell their stories without words through tiny eyes peeking over a hospital mask as they return from a stroll down the hallways.
And there was one more moment to seal the deal. As we walked out of the elevators and started down the hallways on our way back to the car I realized we were lost. Realizing we could wander the halls forever and never find our way back, I figured we would have much more luck walking outside where I could see the streets and know exactly where we were. Hand in hand we started our trek in the muggy heat to the visitor parking garage. On our way, we passed the Ronald McDonald house...just as 2 families were leaving to walk across the street to the hospital to visit their loved one inside. More silent prayers, an extra squeeze to the small hand in mine, and a little giggle at the ongoing chatter about the worlds best video game.
Take a few minutes today to be thankful, for all things great and small. And take a few minutes to pray for that nice man's son. His name is Rodney. You never know how your life will change in 10 minutes.
When we arrived at the hospital, I of course parked in the visitor parking area that was as far away as possible from where we actually needed to be which caused us to take a lengthy jaunt through the hospital halls. This brought one of the first moments that made me stop and catch my breath. There it was, in a hospital just for children, a huge sign that said "Hospice." I said a silent prayer for all the families there, all the while my sweet son chattered away about his latest video game obsession as we continued quickly through the hallways. As we passed the Radiology department I wondered whether my friend's sister was working but decided that since I wasn't 100% sure where I was going that we should just keep moving.
Upon (finally) arriving at our destination of a tiny little waiting area just outside a set of elevators, we were kindly greeted by a gentleman and his father. The man immediately asked William if he would like to play a game of tic, tac, toe. In true style, William ignored him and played on the wooden tic, tac, toe board alone. Still under my above mentioned assumptions, I figured this man was waiting for a child that was with an occupational or physical therapist, and made mental note of how kind the man seemed. We all went about our business; reading, chit-chatting, playing a game of solitaire tic, tac, toe.
Down the hall from the OT/PT gym, I watched as a nurse, a mother, and a small boy began walking toward the elevators in front of us. Enter moment #2. This small boy (probably 2-3 yrs old) had patchy hair undoubtedly from chemo treatment and a tiny face covered in a mask. His mother and the nurse had taken him on a walk and to see if he had the energy to play on the hospital's playground. More silent prayers as I watched him reach up his tiny fingers to push the elevator buttons.
Early for our appointment as usual, we still had time to kill. William continued his game of tic, tac, toe and I watched as the nice man from before reached out and turned one of the pieces and said "I'm O's," trying to engage him in a competition. Without looking up, William turned the block back around, uttered a polite but stern, "no," and continued on his own. The man then turns to me and asks if I have a child staying on this floor. What? I thought all of the kids in this area were outpatient. I explain why we are there and then return the question. Moment #3.
His 17 year old son left for football practice one morning. At 8AM he started working out with the team. By 8:10, he had passed out. 10 minutes. His life, his families lives, completely changed in those 10 minutes. Taken from his local hospital to Childrens for days of CAT scans and surgery. The result...a Stage 4 brain tumor. His family's address is now the Ronald McDonald house. They were in the waiting area when we got there because his son was having an MRI. They are currently awaiting the results of the MRI to tell them whether or not the cancer has spread through the spinal fluid into his central nervous system. As this sweet, strong man told me his story, I watched my son play alone and was ever more thankful for him. I didn't think that was possible. I was thankful for his health, his smile, his unwillingness to allow a strange man to play games with him, his incessant chatter about that stupid video game.
I left content that this soon to be "routine" trip to OT at Childrens' Hospital had made a profound impact on me, but sorrowful for the reasons why, touched by the families inside who share their stories in tiny waiting rooms outside of elevators and who tell their stories without words through tiny eyes peeking over a hospital mask as they return from a stroll down the hallways.
And there was one more moment to seal the deal. As we walked out of the elevators and started down the hallways on our way back to the car I realized we were lost. Realizing we could wander the halls forever and never find our way back, I figured we would have much more luck walking outside where I could see the streets and know exactly where we were. Hand in hand we started our trek in the muggy heat to the visitor parking garage. On our way, we passed the Ronald McDonald house...just as 2 families were leaving to walk across the street to the hospital to visit their loved one inside. More silent prayers, an extra squeeze to the small hand in mine, and a little giggle at the ongoing chatter about the worlds best video game.
Take a few minutes today to be thankful, for all things great and small. And take a few minutes to pray for that nice man's son. His name is Rodney. You never know how your life will change in 10 minutes.
Thursday, August 16, 2007
Welcome to the 21st century!!!
I have a new phone! I have a new phone!!
I just got it this morning so I still have to play around with it and get used to it. Yea new phone!!
Okay, so why all of the excitement over something that people change like they change underwear these days? Well, if you've seen my old phone, you know why. If not, allow me to elaborate...
When I started my job 2 1/2 years ago, I had my own (very old) phone. It started dying, wouldn't hold a charge, right about the same time my boss was firing our Operations Manager who had a company phone. He graciously gave me that phone, told me to ditch my old dying phone, and has been paying for my phone ever since. VERY appreciative, but the phone was, well, hideous. It was definitely a rugged, manly construction worker phone. It was big and bulky. And it wouldn't die...it was dropped, spilled on, even run over in the driveway (I'm not kidding), and the thing barely had a scratch. Wait, I think I've found a picture. This is what I've been carrying for 2 years now:
But now, just when I was about to take the plunge and purchase a replacement, my boss decides that he is changing cell phone service carriers and we all need new phones. Once again, he is more generous to me than I deserve. And now, no more manly phone!! And though most people have had camera phones for YEARS, this is my first. Here is my new, much cuter, phone:
I just got it this morning so I still have to play around with it and get used to it. Yea new phone!!
Thursday, August 09, 2007
To go or not to go...
I skipped my 10 year high school reunion. I was living over 7 hours away and had given birth to Evie just 3 weeks earlier.
My 15-year reunion is this month. I live just around the corner from where the festivities will take place. When I first found out about it, I was planning to go. Now, I'm torn. The closer it gets, the more I'm thinking about skipping this one as well.
Can anyone make a convincing argument for why I *should* go?
My 15-year reunion is this month. I live just around the corner from where the festivities will take place. When I first found out about it, I was planning to go. Now, I'm torn. The closer it gets, the more I'm thinking about skipping this one as well.
Can anyone make a convincing argument for why I *should* go?
Wednesday, August 08, 2007
Tuesday, July 31, 2007
Blah
Having a cold sucks. Having a cold in the middle of the summer when you have a million things to do sucks more.
Thursday, July 26, 2007
I love that kid!
In my world, if the kids are up before me and feeling fine, they simply plunk into my bed, snuggle up nose-to-nose with me and start talking about the day or the dreams they had. The sounds of a small voice uttering "mommy?..." from the doorway are usually only heard in one instance. "Mommy? I just threw up."
What a pleasant surprise (at 5:15!) this morning when William's sweet "Mommy?" was instead followed by "I lost my tooth." He told me the tooth was in his bed, he got a tissue to check for blood, went potty, and climbed back into his bed and went back to sleep. What a cute kid! Toothless Wonder. The tooth fairy seems to make a lot of back-to-back trips to our house.
The front tooth he lost just a few weeks ago has quickly been replaced, so he won't have that completely top-tooth-free grin so many kids his age get, but it sure does make for a cute smile.
What a pleasant surprise (at 5:15!) this morning when William's sweet "Mommy?" was instead followed by "I lost my tooth." He told me the tooth was in his bed, he got a tissue to check for blood, went potty, and climbed back into his bed and went back to sleep. What a cute kid! Toothless Wonder. The tooth fairy seems to make a lot of back-to-back trips to our house.
The front tooth he lost just a few weeks ago has quickly been replaced, so he won't have that completely top-tooth-free grin so many kids his age get, but it sure does make for a cute smile.
Thursday, July 19, 2007
How would you like that cooked?
I've decided that if one of my children has any kind of medical condition and the doctor says there is a "rare" chance of another complication or side effect, then my child can be called "rare."
Evie was born with a VERY small congenital cataract in her right eye. She's seen 3 different pediatric ophthalmologists for it in her young lifetime and each has mentioned that it is probably the smallest one they have ever seen in a child. Each has also taken his or her turn at explaining that the chances of such a small congenital cataract affecting her vision are slim. Or should I say "rare?"
On a whim, since she will be starting kindergarten in the fall and because it has been quite some time since it was last checked out, I decided it was time to monitor progress. I'm SO glad I did. The vision in her right eye is just not up to par. The vision problems canNOT be attributed to near-sightedness, far-sightedness, or an astigmatism. In other words, it is not a vision problem correctable by glasses or lenses. It can be directly attributed to that little, tiny, barely noticeable cataract that had a rare chance of complications. The technical term for what she is developing is amblyopia. The layman's term for what she is developing is "lazy eye." The part of her brain that sends sight signals back and forth with her right eye has decided its just not worth working as hard to keep up with the left eye. This part of her brain has to be stimulated again to get its little rear in gear or it will continue to slowly shut down over time and the vision in her right eye would become quite poor at best, completely gone at worst. So, its time to stimulate those brain cells!
The solution...patch the GOOD eye and make the other one do all the work. So, for 2 hours a day, Evie will be wearing a patch over her left eye. Just call her "Patchy the Princess." The patches look like big eye-shaped band-aids and come in 4 fashion designs. Knowing Evie, she will try to coordinate them with her outfit. If you're interested, you can check them out at www.ortopadusa.com I'll post a picture of her with her patch as soon as I get one. Her doc says the process could take as little as two months or as long as a year to correct. She was excited about the idea of the patch until about 20 minutes into the process when she decided it itches, and is a little irritating. I think that her long eyelashes brush against it when she blinks. She was repeatedly asking to take it off. I don't blame her. It must be tough to be rare. I sometimes wonder what life is like for those parents who have kids that are well-done. Probably not near as exciting. I'll take exciting, thanks. Or should I say "make mine rare!?"
Evie was born with a VERY small congenital cataract in her right eye. She's seen 3 different pediatric ophthalmologists for it in her young lifetime and each has mentioned that it is probably the smallest one they have ever seen in a child. Each has also taken his or her turn at explaining that the chances of such a small congenital cataract affecting her vision are slim. Or should I say "rare?"
On a whim, since she will be starting kindergarten in the fall and because it has been quite some time since it was last checked out, I decided it was time to monitor progress. I'm SO glad I did. The vision in her right eye is just not up to par. The vision problems canNOT be attributed to near-sightedness, far-sightedness, or an astigmatism. In other words, it is not a vision problem correctable by glasses or lenses. It can be directly attributed to that little, tiny, barely noticeable cataract that had a rare chance of complications. The technical term for what she is developing is amblyopia. The layman's term for what she is developing is "lazy eye." The part of her brain that sends sight signals back and forth with her right eye has decided its just not worth working as hard to keep up with the left eye. This part of her brain has to be stimulated again to get its little rear in gear or it will continue to slowly shut down over time and the vision in her right eye would become quite poor at best, completely gone at worst. So, its time to stimulate those brain cells!
The solution...patch the GOOD eye and make the other one do all the work. So, for 2 hours a day, Evie will be wearing a patch over her left eye. Just call her "Patchy the Princess." The patches look like big eye-shaped band-aids and come in 4 fashion designs. Knowing Evie, she will try to coordinate them with her outfit. If you're interested, you can check them out at www.ortopadusa.com I'll post a picture of her with her patch as soon as I get one. Her doc says the process could take as little as two months or as long as a year to correct. She was excited about the idea of the patch until about 20 minutes into the process when she decided it itches, and is a little irritating. I think that her long eyelashes brush against it when she blinks. She was repeatedly asking to take it off. I don't blame her. It must be tough to be rare. I sometimes wonder what life is like for those parents who have kids that are well-done. Probably not near as exciting. I'll take exciting, thanks. Or should I say "make mine rare!?"
Monday, July 16, 2007
I'm an aunt!! (again)
My new niece is here!! Zoe Helena was born Friday, July 13th. We got to see her on Saturday. She is quite possibly the most beautiful newborn I have ever seen. Such a sweet little miracle! William and Evie both got to hold her and were in seventh heaven. We love you, Zoe!
Wednesday, July 11, 2007
100th Post
According to blogger, this is my 100th post. Wow...really? Doesn't seem like I've done that many!
The kids both had their well check-ups yesterday. Evie's was complete with her 5 year shots so that she can head off to Kindergarten. She did well, as far as holding still, but she was a bundle of nerves and tears. After the fact, she did not want anyone looking at her arms where she got the shots. She also had blood drawn, but did much better with that. She says that giving blood doesn't hurt, but the shots sure did. :)
Here are the stats:
William - 51 inches tall, 64 pounds! He's solid! 95th percentile in both height and weight which is up from last years 75th percentile height, 70th percentile weight.
Evie - holding her own at 44 inches and 44 pounds. Her height and weight matched last year too, at 40/40. She is 75th percentile height and weight which is down from last years 90th percentile height and weight. Both kids, perfectly proportionate :)
Both are healthy and right on track (we will get the results from Evie's lab tests later today but I'm sure they're fine).
The kids both had their well check-ups yesterday. Evie's was complete with her 5 year shots so that she can head off to Kindergarten. She did well, as far as holding still, but she was a bundle of nerves and tears. After the fact, she did not want anyone looking at her arms where she got the shots. She also had blood drawn, but did much better with that. She says that giving blood doesn't hurt, but the shots sure did. :)
Here are the stats:
William - 51 inches tall, 64 pounds! He's solid! 95th percentile in both height and weight which is up from last years 75th percentile height, 70th percentile weight.
Evie - holding her own at 44 inches and 44 pounds. Her height and weight matched last year too, at 40/40. She is 75th percentile height and weight which is down from last years 90th percentile height and weight. Both kids, perfectly proportionate :)
Both are healthy and right on track (we will get the results from Evie's lab tests later today but I'm sure they're fine).
Tuesday, July 03, 2007
Happy Birthday Sweet Boy!
Okay, so this should have posted yesterday, but we were too busy celebrating!
Saturday, June 09, 2007
Monday, June 04, 2007
Preschool Graduate
Evie graduated from Preschool on Thursday! I guess this means she is officially a big kid. I know she will miss her friends and teachers, but she is excited about life as a kindergartner! (And she still gets to spend the summer with her favorite teacher, Ms. Karen!)
Singing "Let Them Be Little." Does anyone have a tissue?
Wednesday, May 30, 2007
Wednesday, May 23, 2007
Wednesday, May 16, 2007
A Sigh of Relief
I'm a worrier. It's what I do. And I'm really good at it. But as of yesterday, I have one less thing to worry about!
I've always wondered how people do it...how do you have a child in a half-day kindergarten program in a time when both parents have to work or kids are coming from single-parent homes? I still wonder how people do it, but I don't have to worry any more about how WE will do it. It was just announced that, in our district, kindergarten will now be a full-day program!! William attended kindergarten in a different district that had a full-day K program and it worked out really well. He learned SO much more than I ever even thought possible, and was ahead of the game when 1st grade rolled around. Evie is actually excited to be going all day. She likes the idea of eating lunch at school, and having recess, and the possibility of seeing her big brother in the halls. I like the idea that daycare will be a thing of the past. It works out well for us...Daddy does drop off, Mommy off work in time for pick-up. The schedule works out great for us. I really enjoy having the extra time with them in the afternoons, and am forever grateful to my boss that he allows me to have the schedule I do.
All of this has really hit home for me that she will officially be a "big" kid. We have the school's home visit coming up next week (they come to the homes of all incoming kindergartners), her 5-yr. check up (including the dreaded shots!), her kindergarten screening and orientation, and before you know it, summer will be over and I will have 2 school-agers. Time flies. I'm not sure I'm ready for this. I guess that just gives me something new to worry about. :)
I've always wondered how people do it...how do you have a child in a half-day kindergarten program in a time when both parents have to work or kids are coming from single-parent homes? I still wonder how people do it, but I don't have to worry any more about how WE will do it. It was just announced that, in our district, kindergarten will now be a full-day program!! William attended kindergarten in a different district that had a full-day K program and it worked out really well. He learned SO much more than I ever even thought possible, and was ahead of the game when 1st grade rolled around. Evie is actually excited to be going all day. She likes the idea of eating lunch at school, and having recess, and the possibility of seeing her big brother in the halls. I like the idea that daycare will be a thing of the past. It works out well for us...Daddy does drop off, Mommy off work in time for pick-up. The schedule works out great for us. I really enjoy having the extra time with them in the afternoons, and am forever grateful to my boss that he allows me to have the schedule I do.
All of this has really hit home for me that she will officially be a "big" kid. We have the school's home visit coming up next week (they come to the homes of all incoming kindergartners), her 5-yr. check up (including the dreaded shots!), her kindergarten screening and orientation, and before you know it, summer will be over and I will have 2 school-agers. Time flies. I'm not sure I'm ready for this. I guess that just gives me something new to worry about. :)
Saturday, May 12, 2007
Secret Crush
I couldn't resist posting this picture. This is William's little 1st grade crush. She is sweet on him too. Near Valentine's Day, I actually found a piece of paper in his shirt pocket that was cut in the shape of a heart and had both of their names in it...in William's handwriting. She is a sweet little girl! And she knows the chaos of a big family...she is a triplet!
Thursday, May 10, 2007
Picture pages, picture pages, lots of fun...
Last Friday, the kids experienced their first Arena Football game!! They both had a great time cheering on the Columbus Destroyers!! Thanks to Antoneaux, Evie "won" a Chipotle T-shirt (and William got the cool parachute that the shirt floated down in).
My friend Ronda was at the game (they have season tickets), and Evie spent the whole game with her and her family. She had a ball!! Based on her response to the Destroyers game, I think that she is going to make a great cheerleader.
This picture was too cute to pass up. This is Evie with my cousin (her 2nd cousin) Caris. When we showed up at the house, Caris insisted on dressing just like Evie, including the double french braids. :) They were TOO cute together.
Wednesday, May 09, 2007
You would think...
You would think that after 7 years of being bathed on a regular basis, William might get that YES, you have to take a bath again and YES, that includes getting your hair washed--every time.
You would think that after 5 years of being the child in this relationship, Evie would get that SHE is not the one in charge and no amount of crying, screaming, or thrashing about will change that.
You would think that after 5 years of being the child in this relationship, Evie would get that SHE is not the one in charge and no amount of crying, screaming, or thrashing about will change that.
Monday, April 30, 2007
Wednesday, April 25, 2007
Music of the Night
I have the following songs now stuck in my head, thanks to my two beautiful children.
William's Contribution:
Down by the bay (down by the bay)
Where the watermelon grow (where the watermelon grow)
Back to my home (Back to my home)
I dare not go (I dare not go)
For if I do (For if I do)
My mother will say (my mother will say)
Have you ever seen a bee with a sunburned knee (OR have you ever seen a cow with green eyebrows)
Down by the bay
Evie's Contribution: (apparently to be sung at the TOP of your lungs while jumping on the bed)
Five little speckled frogs
Sitting on a speckled log
Eating some most delicious flies (yum, yum)
One jumped into the pool
Where it was nice and cool
Now there are... (repeat until there are no more frogs)
William's Contribution:
Down by the bay (down by the bay)
Where the watermelon grow (where the watermelon grow)
Back to my home (Back to my home)
I dare not go (I dare not go)
For if I do (For if I do)
My mother will say (my mother will say)
Have you ever seen a bee with a sunburned knee (OR have you ever seen a cow with green eyebrows)
Down by the bay
Evie's Contribution: (apparently to be sung at the TOP of your lungs while jumping on the bed)
Five little speckled frogs
Sitting on a speckled log
Eating some most delicious flies (yum, yum)
One jumped into the pool
Where it was nice and cool
Now there are... (repeat until there are no more frogs)
Thursday, April 12, 2007
Cuties
William's surgery went very well. He had a rough day Friday, but by Saturday, you'd never know he had anything done! He is amazing!
This picture was taken at my niece's 5th birthday party. William has now decided that *HE* wants a gymnastics party too.
My big blue-eyed girl. You can't tell it in the picture, but she
recently attempted to cut her own hair--scary part is, she didn't do too bad :)
Tuesday, April 03, 2007
Can you say "tympanoplasty" boys and girls?
Friday is the big day. Yep, first day of spring break. And how am I letting my wonderful child start off his week of freedom from homework? By taking him in for surgery! Aren't I a great mom?!?!? We are actually paying someone to repair a hole that we originally paid him to put there in the first place. The irony of that has not escaped me.
I've never had surgery. This is William's third. That doesn't quite seem fair to him. I'm more nervous about this one than I was the previous two. Both for the surgery itself (which will take 4 times longer than the previous) and for the recovery (which is actually supposed to be easier than the last one, but I'm thinking long term here...what happens if he gets an ear infection in that ear and doesn't say anything about it until its too late--as usual?)
While her poor brother will be enduring this, Evie will be celebrating spring/Easter with her class...maybe she'll trade me places. I'm such a coward.
I've never had surgery. This is William's third. That doesn't quite seem fair to him. I'm more nervous about this one than I was the previous two. Both for the surgery itself (which will take 4 times longer than the previous) and for the recovery (which is actually supposed to be easier than the last one, but I'm thinking long term here...what happens if he gets an ear infection in that ear and doesn't say anything about it until its too late--as usual?)
While her poor brother will be enduring this, Evie will be celebrating spring/Easter with her class...maybe she'll trade me places. I'm such a coward.
Monday, April 02, 2007
Putting the Puzzle Together
April is Autism Awareness Month. In my opinion, every month should be. The Centers for Disease Control now estimate that 1 out of every 150 children in the United States are on the Autism Spectrum. 1 of every 94 boys in this country falls somewhere on the Spectrum. When Polio numbers were 1 in 3,000 in this country, there was a national outcry demanding something be done. Yet, to date, funding for Autism research is scarce and hard to come by. The most effective, only scientifically-proven treatment for children with autism costs an average of $50,000 per year and is RARELY covered by insurance. Parents are forced to spend valuable time researching and demanding services for their children with autism because often the diagnosis comes with no offer of resources.
The signs, symptoms, and treatments for Autism are not taught in medical school. What?!?!?! You read that right...a disease which affects 1 in every 150 children in the US is not being taught to our future doctors. Finding doctors who know enough about Autism to even suggest an evaluation from outside sources is often difficult, time-consuming, and heart-breaking. Finding quality, qualified doctors that can treat a child on the spectrum can be even more difficult.
But I consider myself lucky. I have a child that contributes to that statistic...1 in 94 boys in the US somewhere on the Autism Spectrum. But he also defies the statistics! 80% of children with autism have an IQ below 70 and are considered mentally retarded. My child scored an IQ in the high average range when his testing took place on an "off" day. Most children with autism are extremely aggressive. My child is one of the most mild-mannered, non-threatening 6 year olds you could ever meet. Many children with autism are non-verbal and unable to communicate. My child, though having slight communication problems, is very verbal, reads on grade level, and loves math, science, and social studies. Many children with autism require special schooling or spend the bulk of their days in a special education or therapy situation. My child attends a regular school and spends his days in a regular classroom with a teacher that adores him, educates others about him, advocates for him, and does not lower her expectations of him. He is fully capable of achieving at or above the level of his peers. We are so grateful! Many children with autism resist physical touch of any kind. My child LOVES "squeezey hugs" and kisses! Even the doctors who have diagnosed him say that although he is without a doubt on the spectrum, his manifestation of the disorder is atypical. I think he is amazing, and I adore him.
We are lucky to live in a city that has TWO quality locations for the diagnosis of autism. One of which offers that ever-so-expensive, but effective therapy (which we are not a part of at the moment). This is where they have begun to hold monthly Autism Academy classes for parents, educators, and care-givers where I have learned so much more about Autism than I ever thought possible. The other of which has a research department solely committed to studying treatments, medications, and therapies for children with autism. This is where my child found his answers...answers to why clothes don't feel right, "normal" noises are torture, crowds and exciting places most kids love make his "brain go crazy," finger painting is unappealing, and its difficult to make and keep friends, as well as many others. However, this state does fall behind in helping families get the resources they need to ensure the best possible outcome. Could be this comes from a lack of funding for research and the lack of knowledge that perpetuates. However, they are not alone. If it were that simple, we'd just move. :)
So, since this is Autism Awareness Month, what can you do to help?
- Do not pass judgement. Autism is not caused by bad parenting, immunizations, or too much TV watching. Though you may not agree with a parenting or discipline style, parents of children with autism are doing the best they can with what they've got and no one knows their child better than they do.
- Be patient...with both the child and the parent. That child who freaks out in the grocery store that you stare at, roll your eyes about, and belittle the parent about just may be autistic. The parent may talk a lot about it...could be they are just looking for SOMEONE outside the situation who will let them vent for a moment.
- Show your support. You can do this by offering help in any manner you are comfortable, whether it be child care, running errands, or housekeeping help. Help give some special attention to a sibling that may be feeling overlooked because they don't get all the "cool" therapies and special appointments. Also consider contributing to those organizations that fund Autism research. The Organization for Autism Research (OAR) can be found at http://www.researchautism.org/. Autism Speaks can be found at http://www.autismspeaks.org/. These are two of the best. You can also show your support with car magnets, key chains, t-shirts, etc. all sold to help fund research. http://www.stiches4autism.com/ offers the widest selection I've found so far.
- Do not be ashamed. Do not make excuses for it, exclude a family because of it, deny it, refuse to talk about it, or try to hide it from others. If you are ashamed to say that a child is autistic, you are teaching that child to be ashamed of himself.
- Educate. Both yourself and those around you. Talking about the child with autism in your life, the signs, symptoms, and behaviors, may just help another family find answers to their own questions.
- Don't be afraid to ask questions. If your are curious about something...ask. Most parents will welcome the opportunity to discuss it.
- Remember that he is a child first, and autism is just a part what makes him who he is. (Hence the reason I use "child with autism" instead of "autistic child.")
If you've read this far...Thank you! Now go out there and do your part to spread Autism Awareness :)
Thursday, March 15, 2007
Grandpa
Charles Anthony Buenning Sr.
BUENNING, Sr. Charles Anthony Buenning, Sr., age 82, of Dayton, formerly of Columbus, Oh., passed away on Wednesday, March 14, 2007 at Hospice of Dayton. Charles attended Ohio State University where he played the trombone in the marching band. He was honored by the University as a Lifetime Member of the OSU Marching Band (TBDBITL). Charles was a longtime member of St. Leonard's Faith Community Church. He served in the United States Marine Corps as a Private First Class during WW II. Charles retired after 26 years of service as a government employee. He was preceded in death by his parents Henry and Gertrude Buenning, sister Lois Kay Buenning and his loving wife of 50 years Barbara Buenning. Charles is survived by his daughter, Jaime (Greg) Skrobot of Centerville; son, Charles (Ann) Buenning, Jr. of Beavercreek; grandchildren, Peter, Evan, and Caris Skrobot, Christy Grassel, Cyndee (Micheal) Whitaker, David, Amy, and Caitlin Buenning; and 7 great-grandchildren (Aaron, Seth, Olivia, Ethan, William, Evie, & Tristan). Mass of Christian Burial will be held Friday, March 16th at the Church of the Holy Angels (Dayton, OH) at 11 a.m. with Fr. Daniel Meyer officiating. Family will receive friends one hour prior to service time at the church. Burial will be at Forest Lawn Memorial Gardens in Columbus, Oh. In lieu of flowers contributions may be made to Hospice of Dayton, 324 Wilmington Ave., Dayton, Ohio 45420. Condolences and or flowers may be sent to the family via the Internet on http://www.routsong.com/.Published in The Columbus Dispatch on 3/15/2007.
Notice • Guest Book • Charities
BUENNING, Sr. Charles Anthony Buenning, Sr., age 82, of Dayton, formerly of Columbus, Oh., passed away on Wednesday, March 14, 2007 at Hospice of Dayton. Charles attended Ohio State University where he played the trombone in the marching band. He was honored by the University as a Lifetime Member of the OSU Marching Band (TBDBITL). Charles was a longtime member of St. Leonard's Faith Community Church. He served in the United States Marine Corps as a Private First Class during WW II. Charles retired after 26 years of service as a government employee. He was preceded in death by his parents Henry and Gertrude Buenning, sister Lois Kay Buenning and his loving wife of 50 years Barbara Buenning. Charles is survived by his daughter, Jaime (Greg) Skrobot of Centerville; son, Charles (Ann) Buenning, Jr. of Beavercreek; grandchildren, Peter, Evan, and Caris Skrobot, Christy Grassel, Cyndee (Micheal) Whitaker, David, Amy, and Caitlin Buenning; and 7 great-grandchildren (Aaron, Seth, Olivia, Ethan, William, Evie, & Tristan). Mass of Christian Burial will be held Friday, March 16th at the Church of the Holy Angels (Dayton, OH) at 11 a.m. with Fr. Daniel Meyer officiating. Family will receive friends one hour prior to service time at the church. Burial will be at Forest Lawn Memorial Gardens in Columbus, Oh. In lieu of flowers contributions may be made to Hospice of Dayton, 324 Wilmington Ave., Dayton, Ohio 45420. Condolences and or flowers may be sent to the family via the Internet on http://www.routsong.com/.Published in The Columbus Dispatch on 3/15/2007.
Notice • Guest Book • Charities
Friday, March 09, 2007
Something about March
Feeling a little sad today. My (paternal) grandfather is in the hospital, responsive, but connected to all kinds of IVs and feeding tubes. My aunt (his power of attorney) is meeting today with Hospice. 8 years ago today, my Grandmother died. This can't be an easy day for my aunt.
I wouldn't say that I have been particularly close with any of my grandparents, which is, I guess, why I've always wanted my kids to be close to their grandparents. Still, I love him dearly and it hurts to know that his time left on earth is growing so much shorter. I have a lot of regrets in regards to my paternal grandparents, but that's for another time. I am thankful that my personal belief system allows me to have faith that he and my grandmother will be reunited to spend their eternities together. I bet she is excited to see him again.
I have an overwhelming desire to make the drive to the hospital this evening (about 1.5 hours away), but I am very torn. I called him this morning...he has no idea who I am anymore. That makes me so sad. I want to be there for my aunt, too, who I know must feel like she is weathering this storm all on her own. In so many respects, she truly is.
UPDATE
I just talked to my aunt. They are moving my grandfather to a hospice facility. No interventions (the IVs, the NG tube, etc.), just pain control. He has had a DNRCC since my grandmother died. He will be transported early this evening. My aunt said that he is in a great deal of pain, has extreme swelling in all extremities with very little output, and that she doesn't expect him to be here long. Pray for peace.
I wouldn't say that I have been particularly close with any of my grandparents, which is, I guess, why I've always wanted my kids to be close to their grandparents. Still, I love him dearly and it hurts to know that his time left on earth is growing so much shorter. I have a lot of regrets in regards to my paternal grandparents, but that's for another time. I am thankful that my personal belief system allows me to have faith that he and my grandmother will be reunited to spend their eternities together. I bet she is excited to see him again.
I have an overwhelming desire to make the drive to the hospital this evening (about 1.5 hours away), but I am very torn. I called him this morning...he has no idea who I am anymore. That makes me so sad. I want to be there for my aunt, too, who I know must feel like she is weathering this storm all on her own. In so many respects, she truly is.
UPDATE
I just talked to my aunt. They are moving my grandfather to a hospice facility. No interventions (the IVs, the NG tube, etc.), just pain control. He has had a DNRCC since my grandmother died. He will be transported early this evening. My aunt said that he is in a great deal of pain, has extreme swelling in all extremities with very little output, and that she doesn't expect him to be here long. Pray for peace.
Thursday, March 08, 2007
I've finally got links :)
Yeah, the new version of Blogger now allows me to add links to the left side of my page. It's the little things in life...
Nothing too exciting...
As I was scanning through the other blogs I try to keep up with, I decided I should at least stop in and say Hi and put up a quick update :)
Both kids are feeling much better, I've got a sinus infection now but at least mine hasn't come with all the other crud like fever, William is doing great at school, Evie is learning to read, woke up yesterday morning to find the heater inoperable but it's fixed now, haven't heard anything back from MR/DD on therapy funding, my Dad and step-mom celebrated their 26th wedding anniversary yesterday, going to play cards with the ladies tonight, traveling to Dayton to see my youngest sister sing in a concert and spend some time with my Dad's side of the family on Sunday, my grandfather has been in the hospital for about 10 days now and it isn't looking good, already starting to think about summer plans, William is trying to figure out ways for my sister and her ex to get back together so he can spend more time with his cousins, my niece turns five in just a few weeks, it's still really cold here, we continue to fight with the van, and I am starting to get excited about the possibility of looking for a house this summer...
That about sums it up for now.
Both kids are feeling much better, I've got a sinus infection now but at least mine hasn't come with all the other crud like fever, William is doing great at school, Evie is learning to read, woke up yesterday morning to find the heater inoperable but it's fixed now, haven't heard anything back from MR/DD on therapy funding, my Dad and step-mom celebrated their 26th wedding anniversary yesterday, going to play cards with the ladies tonight, traveling to Dayton to see my youngest sister sing in a concert and spend some time with my Dad's side of the family on Sunday, my grandfather has been in the hospital for about 10 days now and it isn't looking good, already starting to think about summer plans, William is trying to figure out ways for my sister and her ex to get back together so he can spend more time with his cousins, my niece turns five in just a few weeks, it's still really cold here, we continue to fight with the van, and I am starting to get excited about the possibility of looking for a house this summer...
That about sums it up for now.
Thursday, March 01, 2007
Front Page and the Magic Number
Well, the whole debate involving Evie's preschool has hit more than just the local airways. It made the FRONT PAGE of the paper this morning. Check it out at www.dispatch.com It is also today's "Hot Issue" poll for the paper's website. Okay, so people are upset, but is this really front page news worthy???
We love you City Kids teachers!!!
In other news, the magic number at our house for the last week is 103. That's right, for the past 7 days, one of the two kids has had a fever that hits that mark or above. And it keeps going back and forth, in 2 day cycles. If William makes it to school tomorrow, it will be the only day for the entire week. Evie fell asleep Wednesday at 11:00am and only roused twice before 7:00 this morning. That's right, nearly 18 hours of sleep. Her poor little body was worn out. Both kids are now on antibiotics though, so hopefully the improvement will be quick and drastic.
We love you City Kids teachers!!!
In other news, the magic number at our house for the last week is 103. That's right, for the past 7 days, one of the two kids has had a fever that hits that mark or above. And it keeps going back and forth, in 2 day cycles. If William makes it to school tomorrow, it will be the only day for the entire week. Evie fell asleep Wednesday at 11:00am and only roused twice before 7:00 this morning. That's right, nearly 18 hours of sleep. Her poor little body was worn out. Both kids are now on antibiotics though, so hopefully the improvement will be quick and drastic.
Monday, February 26, 2007
Under attack
Hhhmmmm...where do I start. Evie's daycare center is under a public media attack. Why? Because they charged a mother an extra $50 a week to allow her to bring breast milk for her daughter. The daycare argued that there are several reasons for this...including providing a separate refrigerator (labeled as a biohazard) for the milk, and special precautions during heating. I understand both sides to be honest. I think that $50/week is outrageous!! And I understand the breastmilk is the best food for an infant and the childcare situation should support that choice. But I also think a small fee is not out of the question considering the precautions the daycare is willing to take. Could you imagine the backlash if the breastmilk was accidentally fed to the wrong baby??? Everyone makes mistakes.
So now, there is this complete media frenzy surrounding the school. Parents are planning "nurse-ins" and people are seeking a class action law suit against the school. While I understand the importance of the issue, I am torn. I understand why these parents are upset, and in the same situation, I would be too, but Evie is receiving a 1st class education--far better than any other daycare I have ever seen. She LOVES it there, and I love the teaching staff in the 2 rooms she has been in. She is beyond the age of breastfeeding vs. bottle feeding, so the issue doesn't even relate to her. At least it shouldn't. BUT, if there is a massive "nurse-in" at the daycare, it CAN effect her. If you have several women in the school all breastfeeding and complaining about the school, demanding action, it not only disrupts her school day and learning environment, it has the potential to frighten her, and make her anxious and nervous about going to school every morning.
There is certainly a potential for some unpleasant outcomes.
So now, there is this complete media frenzy surrounding the school. Parents are planning "nurse-ins" and people are seeking a class action law suit against the school. While I understand the importance of the issue, I am torn. I understand why these parents are upset, and in the same situation, I would be too, but Evie is receiving a 1st class education--far better than any other daycare I have ever seen. She LOVES it there, and I love the teaching staff in the 2 rooms she has been in. She is beyond the age of breastfeeding vs. bottle feeding, so the issue doesn't even relate to her. At least it shouldn't. BUT, if there is a massive "nurse-in" at the daycare, it CAN effect her. If you have several women in the school all breastfeeding and complaining about the school, demanding action, it not only disrupts her school day and learning environment, it has the potential to frighten her, and make her anxious and nervous about going to school every morning.
There is certainly a potential for some unpleasant outcomes.
Monday, February 12, 2007
Feeling FURIOUS!
Okay, so the latest issue of "Working Mother" magazine is out. This morning, as I was walking out the door for work, I noticed one of the headlines on the cover..."Does television trigger autism?" I was interested to see how they would help dispel the myth, so I grabbed it to read when I had an extra minute or two at the office. Now, I'm just angry.
There has been a recent dramatic increase in the number of children diagnosed with autism spectrum disorders. This very short, two paragraph "article" states that recent research suggests that television viewing by children is contributing to the increase in autism! What a bunch of crap! You know what they are basing this on??? A single study of cable subscriptions in Pennsylvania and California from the years 1970-1990. This study says that cable TV subscriptions in these 2 states increased at the same rate as the increase in autism spectrum disorder diagnoses. Of course! They increased at the same rate so there MUST be a connection between the two. It couldn't POSSIBLY be that cable TV technology has improved so much that "basic" cable is now more affordable to the general public, AND that coincidentally, medical technology has improved at the same rate so that there are now clearer understandings of the symptoms of autism and a more definitive set of diagnostic criteria that allow children to now be accurately diagnosed on the autism spectrum instead of with some other problem. Unbelievable!! Thanks so much for sending us straight back to the days when it was believed that autism was caused by cold, neglectful mothers. I am flabbergasted! It's difficult enough raising a child with an autism spectrum disorder without having the "experts" create theories that perpetuate nothing but guilt on the part of the parents. Instead of continuing to waste money on finding a cause/blaming the parents (the REAL experts agree that there is no single cause, there are a variety of possibilities, each child's cause could be different, and it is most likely genetic), perhaps they could instead invest that money on finding therapies that actually work to help these children achieve their absolute highest potential and then making those therapies affordable for all families! If autism is related to TV watching, how in the world do you explain away the fact that children on the spectrum actually show signs from infancy...LONG before they are diagnosed OR begin watching TV????
The only thing that makes me directly responsible for my child's autism spectrum disorder is that I contributed half of his chromosomes to him and gave birth to him. I do not think it is because he watched too much TV as a toddler, or because I was neglectful, or because I allowed his doctors to give him to get his immunizations. Anyone who chooses to judge me differently and feels that I am responsible, or would just like to know more about the subject, is invited to discuss this with me openly. I promise I'll stay calm. :)
There has been a recent dramatic increase in the number of children diagnosed with autism spectrum disorders. This very short, two paragraph "article" states that recent research suggests that television viewing by children is contributing to the increase in autism! What a bunch of crap! You know what they are basing this on??? A single study of cable subscriptions in Pennsylvania and California from the years 1970-1990. This study says that cable TV subscriptions in these 2 states increased at the same rate as the increase in autism spectrum disorder diagnoses. Of course! They increased at the same rate so there MUST be a connection between the two. It couldn't POSSIBLY be that cable TV technology has improved so much that "basic" cable is now more affordable to the general public, AND that coincidentally, medical technology has improved at the same rate so that there are now clearer understandings of the symptoms of autism and a more definitive set of diagnostic criteria that allow children to now be accurately diagnosed on the autism spectrum instead of with some other problem. Unbelievable!! Thanks so much for sending us straight back to the days when it was believed that autism was caused by cold, neglectful mothers. I am flabbergasted! It's difficult enough raising a child with an autism spectrum disorder without having the "experts" create theories that perpetuate nothing but guilt on the part of the parents. Instead of continuing to waste money on finding a cause/blaming the parents (the REAL experts agree that there is no single cause, there are a variety of possibilities, each child's cause could be different, and it is most likely genetic), perhaps they could instead invest that money on finding therapies that actually work to help these children achieve their absolute highest potential and then making those therapies affordable for all families! If autism is related to TV watching, how in the world do you explain away the fact that children on the spectrum actually show signs from infancy...LONG before they are diagnosed OR begin watching TV????
The only thing that makes me directly responsible for my child's autism spectrum disorder is that I contributed half of his chromosomes to him and gave birth to him. I do not think it is because he watched too much TV as a toddler, or because I was neglectful, or because I allowed his doctors to give him to get his immunizations. Anyone who chooses to judge me differently and feels that I am responsible, or would just like to know more about the subject, is invited to discuss this with me openly. I promise I'll stay calm. :)
Friday, February 02, 2007
Homework Help
In the sweetest little display ever, William voluntarily starting helping Evie with her homework on Wednesday night (yes, homework...in preschool!). He was explaining to her how to graph information about a set of pictures she had, and then how to interpret the graph. It was so cute! When they came to counting the number of earmuffs in the picture, William said, "Okay, there are 1...2...3. 3 sets of earMUGS." I had to leave the room to giggle out loud.
Wednesday, January 31, 2007
Ladies Night
Evie is so excited. She has really been taking an interest in my scrapbooking activities lately. So I casually mentioned to her that we should go one night and rent a hotel room and scrapbook together all night. Well, she hasn't shut up about it since, so we are going to do it this weekend!
She is so cute. She picked out her own little pink scrapbook yesterday. She even took a disposable camera to school today so she could take her own pictures! She also keeps asking if she can stay up past her bedtime if she's not tired yet.
So Saturday, we will have a nice girls lunch, go to a scrapbook store for her to pick out her own papers and stickers, and then check in for a night of scrapping! I'm looking forward to it too. I hope she and I can make this a tradition.
William is excited too. He's excited that the girls will be out of the house and he can play video games and Pokemon all night. He'll get his special night with Mom, too. He might actually want his own scrapbooking night as well.
PS - Ronda, if you want to join us Saturday, Evie would be more than thrilled! Trust me!
She is so cute. She picked out her own little pink scrapbook yesterday. She even took a disposable camera to school today so she could take her own pictures! She also keeps asking if she can stay up past her bedtime if she's not tired yet.
So Saturday, we will have a nice girls lunch, go to a scrapbook store for her to pick out her own papers and stickers, and then check in for a night of scrapping! I'm looking forward to it too. I hope she and I can make this a tradition.
William is excited too. He's excited that the girls will be out of the house and he can play video games and Pokemon all night. He'll get his special night with Mom, too. He might actually want his own scrapbooking night as well.
PS - Ronda, if you want to join us Saturday, Evie would be more than thrilled! Trust me!
Friday, January 19, 2007
He's getting married!!!
A dear old friend of mine is getting married in April! Okay, so it's not "technically" a marriage...it's a "civil union." What kind of crap is that? Seriously! I will NEVER understand why people have a problem with gay marriage. Though there is SO much I could say on the subject, when you boil it all down, what difference does it make to a person's life if Joe and Steve down the block get married? Would that change ANYTHING about how they live their own life on a daily basis? Besides that, last time I checked, we were all HUMAN (though at times I really wonder). Shouldn't human beings all be treated equally?
Can you tell this is a topic I feel strongly about? Okay, sorry, I'll get off my soapbox now. It's just that this person, my friend, is such an amazing human being. He lights up a room and his laughter is infectious (and for some reason, Leo DiCaprio has been reminding me of him lately?!? Sorry if that's offensive :). He's been through so much in his 30 years on this earth (I just realized that I've known him for half his life!), he DESERVES for the next 30 (and more!) to be filled with nothing but happiness. What right do others have to take any part of that away from him? Kudos to New Jersey for opening up enough to allow this to happen. I am so happy that my friend has found someone so special, that he is ready to make a life-long commitment, that he is happy. No one deserves it more.
I will do everything I can to make it to New Jersey this April.
Can you tell this is a topic I feel strongly about? Okay, sorry, I'll get off my soapbox now. It's just that this person, my friend, is such an amazing human being. He lights up a room and his laughter is infectious (and for some reason, Leo DiCaprio has been reminding me of him lately?!? Sorry if that's offensive :). He's been through so much in his 30 years on this earth (I just realized that I've known him for half his life!), he DESERVES for the next 30 (and more!) to be filled with nothing but happiness. What right do others have to take any part of that away from him? Kudos to New Jersey for opening up enough to allow this to happen. I am so happy that my friend has found someone so special, that he is ready to make a life-long commitment, that he is happy. No one deserves it more.
I will do everything I can to make it to New Jersey this April.
Thursday, January 04, 2007
525,600 minutes
Happy New Year! Hard to believe that 2006 came and went so quickly. So much happened last year that it all seems like a blur. I'm excited to see what 2007 has in store. I know it will be an adventure, as we already know some of what is coming our way.
In 2007:
In 2007:
- William will have a tympanoplasty to repair the hole in his right ear drum. This is a graft surgery and is a little more complex than I originally anticipated. He may have to take a week off for the recovery, and has not done well with general anesthesia in the past so I am not really looking forward to putting him through this. However, without it, the hole could develop a benign tumor that could destroy his hearing. It is a necessary evil.
- Evie will finish her first year of dance with a recital in the early summer. She is already talking about it. I'm praying the costume will fit since they measured her for it before Christmas and she is growing like a weed. She LOVES being a dancer.
- William will finish 1st grade and head onto 2nd! Hard to believe he will be turning 7 in July. I remember his infanthood as though it were just yesterday. He brings me more joy now than he did back then, and I would have never thought that possible. He assures me he will always be my baby and is a total momma's boy.
- Evie will start Kindergarten! She is so ready. She thought she would start the day after she turns 5 and was heartbroken to learn that wasn't the case. Wow, with that, there will officially be no more "babies" in the house. What will we do with all the money we'll save on childcare? :)
- We will welcome another baby into the family (not me!). I will be an aunt again in July.
Those are the things I'm certain of. I'm sure that there are more that I can't think of right now, but that's a good start. Here's hoping that you have a happy, healthy, exciting 2007!
Subscribe to:
Posts (Atom)
